Monday, September 26, 2005

Event: Workshop on the Long-term Curation and Preservation of Medical Databases

DCC and ERPANET Workshop on the Long-term Curation and Preservation of Medical Databases 13th-14th October, 2005 Calouste Gulbenkian Foundation, Lisbon, Portugal

Register for this Workshop

The Digital Curation Centre is pleased to announce that it will be delivering a two-day workshop on the long-term curation and preservation of medical databases. This workshop will be held at the Calouste Gulbenkian Foundation in Lisbon, Portugal from 13th - 14th October 2005.
This event is co-sponsored by ERPANET, the Calouste Gulbenkian Foundation and the Digital Curation Centre.

Enabling access to and re-use of digital information is an integral part of medical research and health-service provision and is essential for enabling accountability. This workshop will explore the ways that practitioners can support accessibility and reusability of medical databases over time. The workshop will provide an opportunity for information professionals, medical practitioners, commercial developers, students, and researchers to network with colleagues, learn about current developments, discuss their own experiences, and to identify risks and challenges that are likely to emerge. Presentations, and panel discussions will offer participants cross-disciplinary perspectives on the long-term preservation of medical databases.


The workshop will be delivered over three broad sessions: medical database creation, curation and reuse. Each session will be chaired by a practitioner in the field. The chair will begin the session by placing the topic into the context of digital curation and provide references to international efforts in the area. Following this introduction, each session will highlight specific tools, practical approaches and emerging standards in the form of presentations. Each session will conclude with an open question period which will be moderated by the session chair.

Key themes include:
  • Tools and standards to help create, curate and reuse medical databases;
  • Description techniques that may help to ensure the long-term usability of digital medical information within databases;
  • Overview of curation and preservation activities being undertaken internationally
Confirmed speakers for this event include:
  • Peter Singleton, Cambridge Health Informatics
  • Peter Kerr, NCRI Cancer Informatics Initiative
  • Warren Hilder, Medical Research Council
  • Livia Iacovino, Australia’s HealthConnect Project, Monash University
  • Robert Terry, Wellcome Trust
To see the full programme, please see

Programme Committee:
  • Niklaus Butikofer, Co-Director ERPANET
  • Alan Doyle, Science Programme Manager, Wellcome Trust
  • Mariella Guerico, Universit√† degli Studi di Urbino Carlo Bo
  • Hans Hofman, Nationaal Archief van Nederland
  • Seamus Ross, Associate Director DCC Services and Director, HATII, University of Glasgow
  • Allan Sudlow, Programme Manager, Research Management Group, Medical Research Council

The venue for this event will be the Calouste Gulbenkian Foundation, Lisbon, Portugal. For more information on the venue please see

Travel Instructions

See detailed options for travelling to the Calouste Gulbenkian Foundation at


Registration fees are £75 for DCC Associates Network members and £125 for non-members. These fees include all workshop materials and handouts, lunch on the 14th and refreshments. Membership of the DCC Associates Network is free and more information on becoming a member can be found at

1 comment:

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